Comments on: I Don’t Have Celiac!!!! http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/ Lessons and Recipes for the Gluten Free Cook Mon, 08 Sep 2008 00:45:22 +0000 http://wordpress.org/?v=2.5.1 By: Tina http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4463 Tina Mon, 30 Jun 2008 16:22:05 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4463 We have been going through issues w/ my son for several years now... Yes years. Just this week he was diagnosed with Celiac disease and we have been scheduled to see a GI specialist as well. His pediatrician wanted to fill him full of every allergy drug known to man and NONE of them were all that effective. I found an alternative healthcare clinic that found he had 30+ allergies (milk, dairy, corn, wheat, dust mites, trees, etc. etc......). I have found some really good GF/CF foods and have learned to make incredible chicken nuggets, but now that I have been laid off it is almost IMPOSSIBLE to afford a lot of the GF/CF stuff.... Would be nice if there was a GF/CF food plan on a budget type course. We could all benefit from that for sure!!!!!!!! If you hear of any good places to actually sit face to face and discuss this in the Indy area let me know Thanks We have been going through issues w/ my son for several years now… Yes years. Just this week he was diagnosed with Celiac disease and we have been scheduled to see a GI specialist as well.

His pediatrician wanted to fill him full of every allergy drug known to man and NONE of them were all that effective. I found an alternative healthcare clinic that found he had 30+ allergies (milk, dairy, corn, wheat, dust mites, trees, etc. etc……).

I have found some really good GF/CF foods and have learned to make incredible chicken nuggets, but now that I have been laid off it is almost IMPOSSIBLE to afford a lot of the GF/CF stuff….

Would be nice if there was a GF/CF food plan on a budget type course. We could all benefit from that for sure!!!!!!!!

If you hear of any good places to actually sit face to face and discuss this in the Indy area let me know

Thanks

]]> By: Patty http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4114 Patty Mon, 02 Jun 2008 13:36:29 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4114 Thanks for sharing this very helpful info. I too have food sensitivities (including wheat, tomatoes, sugar) and have heard about the link to pollens (I'm allergic to quite a few). Interestingly, I noticed is that my food sensitivities aren't consistent: I can get horrible cramps from wheat one month, and be fine with it the next. Generally avoiding these foods does seem to help, and now I'll keep track of the local pollens to see if there's a connection between them and my food sensitives. Cheers! Patty Thanks for sharing this very helpful info. I too have food sensitivities (including wheat, tomatoes, sugar) and have heard about the link to pollens (I’m allergic to quite a few). Interestingly, I noticed is that my food sensitivities aren’t consistent: I can get horrible cramps from wheat one month, and be fine with it the next. Generally avoiding these foods does seem to help, and now I’ll keep track of the local pollens to see if there’s a connection between them and my food sensitives.
Cheers!
Patty

]]> By: Gluten Free [Cooking School] » Blog Archive » GF Birthday Cake, Allergies, Veganism and 50 Lbs to Lose http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4028 Gluten Free [Cooking School] » Blog Archive » GF Birthday Cake, Allergies, Veganism and 50 Lbs to Lose Thu, 29 May 2008 03:33:26 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4028 [...] In other news, I’ve given a considerable amount of thought as to how to proceed regarding my pollen/wheat allergy. The anithistamine (Xyzal) and steroid spray (Nasonex) that the doctor prescribed are helping the [...] [...] In other news, I’ve given a considerable amount of thought as to how to proceed regarding my pollen/wheat allergy. The anithistamine (Xyzal) and steroid spray (Nasonex) that the doctor prescribed are helping the [...]

]]> By: Lyra http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4018 Lyra Wed, 28 May 2008 18:13:35 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-4018 Wow! I came upon your website from Twitter, and just, well.. Wow. I'd never heard of Oral Allergy Syndrome! It's amazing what our bodies can do, you know? Blessings to you on this very unique journey! ~Lyra Wow! I came upon your website from Twitter, and just, well.. Wow. I’d never heard of Oral Allergy Syndrome! It’s amazing what our bodies can do, you know?

Blessings to you on this very unique journey!
~Lyra

]]> By: Peggy http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3975 Peggy Mon, 26 May 2008 02:37:02 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3975 Hi Mary Frances. What an experience you have had. We are new to the gluten-free way of life. In late February we discovered wheat affected my daughter and on April 1st I was diagnosed with diabetes that is strongly affected by gluten. Your website has been illuminating and has encouraged me to explore our options. Anyway- to your question about allergy shots. My husband lived on allergy shots and prescription medication for years. He has a great system that builds resistance to medication easily so he seemed to always need new and stronger medication. We started seeing a naturopath in conjunction to our medical doctor, about 15 years ago and Jack has been 'drug free' ever since ( I use the term loosely because he is on various medicaitons from both doctors, but nothing like he was and NO shots). I strongly advise that you check your options before you do shots. You are in tune with your system and no one knows you like you. Pardon the the pun, but go with your GUT on this one. Hi Mary Frances. What an experience you have had. We are new to the gluten-free way of life. In late February we discovered wheat affected my daughter and on April 1st I was diagnosed with diabetes that is strongly affected by gluten. Your website has been illuminating and has encouraged me to explore our options. Anyway- to your question about allergy shots. My husband lived on allergy shots and prescription medication for years. He has a great system that builds resistance to medication easily so he seemed to always need new and stronger medication. We started seeing a naturopath in conjunction to our medical doctor, about 15 years ago and Jack has been ‘drug free’ ever since ( I use the term loosely because he is on various medicaitons from both doctors, but nothing like he was and NO shots). I strongly advise that you check your options before you do shots. You are in tune with your system and no one knows you like you. Pardon the the pun, but go with your GUT on this one.

]]> By: Dorothy http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3941 Dorothy Sat, 24 May 2008 03:56:10 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3941 I spent most of my life battling allergies and hay fever. I was allergic to all sorts of pollens, mainly grasses and trees, but many more as well. I had scratch tests and allergy shots several times. The allergy shots would take about 2-3 years to get to maximum dose (they could only raise my dosage very slowly or I would react), and then I'd have maybe 2-3 years of benefit, and then the allergies would come back. I lived on Claritin, Allegra, Flonase and Kleenex. Then I finally saw an acupuncturist (because of other issues) who told me to go off of gluten (diagnosed via muscle testing). I have been GF for two years now, and one wonderful side effect is that my seasonal (9 months of the year) allergies have dwindled to almost nothing. So, I'm kind of the opposite of you--your gut led you to find out about pland allergies, and my plant allergies (and other immune system dysfunctions) let me to find out that my body does NOT appreciate gluten. I recommend you get a second opinion from a different practitioner before you make any expensive decisions. Good luck! Dorothy p.s. they always checked me 10 minutes after the scratch test, and usually gasped and quickly rubbed down my back with whatever they use to clean it off. They usually gave me Benadryl at that point, too. I can't imagine going for 20 minutes!! I spent most of my life battling allergies and hay fever. I was allergic to all sorts of pollens, mainly grasses and trees, but many more as well. I had scratch tests and allergy shots several times. The allergy shots would take about 2-3 years to get to maximum dose (they could only raise my dosage very slowly or I would react), and then I’d have maybe 2-3 years of benefit, and then the allergies would come back. I lived on Claritin, Allegra, Flonase and Kleenex. Then I finally saw an acupuncturist (because of other issues) who told me to go off of gluten (diagnosed via muscle testing). I have been GF for two years now, and one wonderful side effect is that my seasonal (9 months of the year) allergies have dwindled to almost nothing. So, I’m kind of the opposite of you–your gut led you to find out about pland allergies, and my plant allergies (and other immune system dysfunctions) let me to find out that my body does NOT appreciate gluten. I recommend you get a second opinion from a different practitioner before you make any expensive decisions. Good luck!
Dorothy
p.s. they always checked me 10 minutes after the scratch test, and usually gasped and quickly rubbed down my back with whatever they use to clean it off. They usually gave me Benadryl at that point, too. I can’t imagine going for 20 minutes!!

]]> By: Lynn Barry http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3788 Lynn Barry Thu, 15 May 2008 11:38:45 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3788 How amazing...you knew something wasn't right and found out you were right. I suspected wheat problems too and although I didn't test positive for celiacs I stay away from wheat as well...my head itches and face breaks outs in itcy blisters if I use products with wheat and I get a headache and can't sit still when I ingest it... At any rate...good for you and thanks for the great advice and your willingness to share. HUGS How amazing…you knew something wasn’t right and found out you were right. I suspected wheat problems too and although I didn’t test positive for celiacs I stay away from wheat as well…my head itches and face breaks outs in itcy blisters if I use products with wheat and I get a headache and can’t sit still when I ingest it…
At any rate…good for you and thanks for the great advice and your willingness to share. HUGS

]]> By: Jo http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3784 Jo Thu, 15 May 2008 01:09:43 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3784 Let me share quickly (briefly) what happened to me. I went in to an allergist and they did a skin test and I reacted violently to 47 different foods from a skin test. Oh my goodness, the nurses said. We've never seen anything like this. The doctor took a look and then suggested I never eat any of those foods again. Wheat was just one of them. Tomatoes was another. I went for almost a year on a VERY STRICT diet, felt much much better, and then got retested at National Jewish in Denver, where they did RAST blood testing for true IgE allergies. I didn't have any. At that point, we figured out celiac. Two years later, I went in to an allergist in Ohio who was to do a skin scratch test for my pollen allergies so I could start shots and LO and BEHOLD, I had dermographism. What is it? It's a fairly rare skin condition that means when you're having a lot of allergic reactions to pollen and stuff that if you scratch your skin, it weals up and stays that way for days. It throws off any scratch test ever done. None of the scratch testing up to that point had been accurate! They did RAST blood tests for everything and then figured out my ragweed allergy, etc. So, what I would suggest is, based on ALL of your results, see if you have dermographism before you drastically change your life and pay large amounts of money. And really, if you suspect true allergy, have them do the RAST blood tests. Take care, and good luck with it all. (P.S. I'm anaphylactic for no known reason, so they won't give me shots. I live on Zyrtec and Flonase - and do quite well with my gluten-free corn-free diet). Let me share quickly (briefly) what happened to me. I went in to an allergist and they did a skin test and I reacted violently to 47 different foods from a skin test. Oh my goodness, the nurses said. We’ve never seen anything like this. The doctor took a look and then suggested I never eat any of those foods again. Wheat was just one of them. Tomatoes was another. I went for almost a year on a VERY STRICT diet, felt much much better, and then got retested at National Jewish in Denver, where they did RAST blood testing for true IgE allergies. I didn’t have any. At that point, we figured out celiac. Two years later, I went in to an allergist in Ohio who was to do a skin scratch test for my pollen allergies so I could start shots and LO and BEHOLD, I had dermographism. What is it? It’s a fairly rare skin condition that means when you’re having a lot of allergic reactions to pollen and stuff that if you scratch your skin, it weals up and stays that way for days. It throws off any scratch test ever done. None of the scratch testing up to that point had been accurate! They did RAST blood tests for everything and then figured out my ragweed allergy, etc. So, what I would suggest is, based on ALL of your results, see if you have dermographism before you drastically change your life and pay large amounts of money. And really, if you suspect true allergy, have them do the RAST blood tests. Take care, and good luck with it all. (P.S. I’m anaphylactic for no known reason, so they won’t give me shots. I live on Zyrtec and Flonase - and do quite well with my gluten-free corn-free diet).

]]> By: Kate http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3783 Kate Wed, 14 May 2008 20:14:06 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3783 Hi MaryFrances :) I'm happy to hear that you are on your way to figuring it all out. The information you have provided is very helpful! :) On a selfish note..... I'm SUPER pleased to see that you will still be GLUTEN FREE as I can continue to read, recreate and fall in love with your recipes. (Sorry.. super selfish...but had to admit the truth of what I was thinking when I read the post title. I thought "EEK GADS! Don't tell me Mary Frances isn't going to be a GF blogger any more!" oh.. bad selfish me..... I'm going to share this post with my sister and her family as they too have numerous food and grass, pollen, etc allergies. We've always wondered about celiac with one of her sons (and her, to be honest). I think this post will help. Thanks! :) Kate Hi MaryFrances :)
I’m happy to hear that you are on your way to figuring it all out. The information you have provided is very helpful! :)

On a selfish note….. I’m SUPER pleased to see that you will still be GLUTEN FREE as I can continue to read, recreate and fall in love with your recipes. (Sorry.. super selfish…but had to admit the truth of what I was thinking when I read the post title. I thought “EEK GADS! Don’t tell me Mary Frances isn’t going to be a GF blogger any more!” oh.. bad selfish me…..

I’m going to share this post with my sister and her family as they too have numerous food and grass, pollen, etc allergies. We’ve always wondered about celiac with one of her sons (and her, to be honest). I think this post will help.
Thanks!
:)
Kate

]]> By: Lauren http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3781 Lauren Wed, 14 May 2008 18:44:22 +0000 http://www.glutenfreecookingschool.com/archives/i-dont-have-celiac/#comment-3781 Thanks for sharing this! It really rings true to my experience over the past 9 months. I was having hives daily on my feet/hands/legs for many months and went to the allergist. I had a similar HIGH reaction to pollens/trees where they brought every nurse in to see my welts. Birch was HUGE. Anyhow, I also had the food tests and I am a 1 reaction to wheat, 2 to tomatoes, a 2 hazelnuts, etc. He said I might have a "variant of Celiac's" but never went further as he was pushing shots and I'm just not sure about them. I think this means I probably need to find a younger allergist. This is the same man my mother brought me to as a baby. Thanks for sharing this! It really rings true to my experience over the past 9 months. I was having hives daily on my feet/hands/legs for many months and went to the allergist. I had a similar HIGH reaction to pollens/trees where they brought every nurse in to see my welts. Birch was HUGE. Anyhow, I also had the food tests and I am a 1 reaction to wheat, 2 to tomatoes, a 2 hazelnuts, etc. He said I might have a “variant of Celiac’s” but never went further as he was pushing shots and I’m just not sure about them. I think this means I probably need to find a younger allergist. This is the same man my mother brought me to as a baby.

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